You Have a Diagnosis, Now What? It's a question that can send shockwaves through your entire being. Sometimes, receiving a diagnosis can feel like being thrust into uncharted territory, leaving you feeling lost and confused, unsure of where to turn next. But amidst the uncertainty, there's also hope—a chance to finally make sense of the signs and concerns that have been causing confusion for so long. For some of us, like our family, that diagnosis brought a sense of clarity and relief. With a supportive team of professionals at our side, we finally felt understood and equipped to face the road ahead. However, for those who find themselves without that same level of support, I hope this post can serve as a tool of guidance and reassurance.
1. Take a Deep Breath:
When you first receive a diagnosis, it's natural to feel a whirlwind of emotions—fear, uncertainty, and even relief that there's finally an explanation for what's been going on. Take a moment to pause, breathe, and allow yourself to process everything. It's okay to feel overwhelmed, but remember, you're not alone in this journey. And it's perfectly alright if this step takes some time. Take all the time you need to gather yourself and process. Because ahead lies the battle, and you'll want to be prepared.
2. Rally Your Village:
In times of uncertainty, the strength of community can be a lifeline. Reach out to your friends, family, neighbors, and anyone who can offer support. Share your needs openly and honestly, and don't be afraid to ask for help when you need it. Your support network will swiftly emerge, revealing those who stand by you and those who may not fully comprehend the situation.
I recall when we shared the news of Leah's diagnosis with others; the best response I received was, "That's so cool! Check out Temple Grandin, I just love her stories! This is exciting." Clearly, this individual belongs in your village. Conversely, I encountered a different reaction from someone who remarked, "Really? She seems healthy to me." Well, scratch that one off your list. Firstly, yes, she is healthy, and while I could delve further into this, let's not dwell on it any longer. Moving on.
3. Rally Your Child's Village:
Next, embark on the journey to find your child's village. While they may already have wonderful friends or supportive neighbors, it's crucial for children to have a network of trusted adults they can rely on. These individuals will be there to provide support, guidance, and empowerment as your child navigates the path ahead.
4. Advocate, Fight, Support
As a parent, you are your child's biggest advocate. Now is the time to roll up your sleeves and fight for the support and resources your child needs to thrive. Seek out therapy services, support groups, and educational resources in your community. Schedule evaluations and appointments for early intervention, and work closely with your child's school to ensure their needs are met both academically and socially.
It's not always easy, but it is undeniably worth it. Witnessing your child learn, grow, and thrive is a profoundly beautiful experience. From their humble beginnings to witnessing their progression, every step of the journey is filled with joy and wonder. Of course, there may be setbacks along the way, which can be incredibly challenging, but every moment is worth the fight. As you navigate the complexities of advocating for your child, remember that you are not alone. Lean on your support network, seek guidance from professionals, and never lose sight of the incredible progress your child is making. Together, you can overcome any obstacle and create a brighter future for your child.
4. Embrace the Journey of Bonding:
Amidst the challenges and uncertainties, don't forget to embrace the moments of joy and connection that come with parenting an autistic child. Celebrate your child's unique personality and spirit, and find joy in the small victories along the way. Communication may look different, but there are countless ways to connect and bond with your child on this journey.
Find new ways to grow with your child too. Your kiddo isn't the only one learning now. As you navigate the intricacies of raising an autistic child, you'll discover new perspectives, strengths, and resilience within yourself. And the best part? Your child becomes a teacher too. Through their unique experiences and perspective, they'll impart invaluable lessons of empathy, patience, and unconditional love, enriching your life in ways you never imagined. Embrace this beautiful exchange of knowledge and growth, and cherish the profound bond that blossoms between you and your child.
5. Find Beauty in the Uniqueness:
Autism is a unique perspective to be celebrated. Embrace the beauty of your child's neurodiversity and the richness it brings to your lives. Take pride in their accomplishments, both big and small, and celebrate the unique gifts and talents that make them who they are.
In conclusion, navigating life after a diagnosis requires courage, resilience, and a strong support network. Embrace the journey with an open heart and an unwavering commitment to advocating for your child's needs. Together, we can create a world where every child, regardless of their neurodiversity, has the opportunity to thrive and succeed.
This picture is of Leah during one of her testing appointments with her favorite little trinkets. Leah's trinkets have always been small, fitting snugly into her hand, and they tend to remain the same for weeks at a time. At this time, it was lotion, lip balm, and a tiny gem—her cherished "gems" that provided her with a sense of comfort and security.
Leah's rigidity often means she relies on these special items, and I can still hear her sweet voice declaring, "I need my special gem." It's moments like these that remind me of Leah's gentle spirit and the simple joys that bring her comfort in a sometimes overwhelming world
